Last week I was honoured to be the only photographer invited to this year’s Murdoch Children’s Research Institute Dame Elisabeth Murdoch Rose Mother’s Day Appeal Garden Party. Not exactly a name that rolls of the tongue, but it certainly is a beautiful event to be a part of and I am proud to have been invited back for two years running.
The luncheon follows in the steps started by the late Dame Elisabeth, a much loved philanthopist who was passionate about children and finding ways to cure their illnesses. She founded the Children’s Research Institute, which has come to be at the very forefront of medical research both in Australia and worldwide.
Lachlan and Sarah Murdoch invited guests into their stunning Sydney home, with stunning views over Sydney Harbour for the fundraiser, which the institute hope will bring them enough money to start on their way to afford a new gene scanner.
Lisa Wilkinson of Channels 9’s Today Show was a fabulous MC for the event, which was also attended by guests including Ros Packer, Hon. Marie Bashir, Lucy Turnbull, Edwina McCann, Paul Bangay and Collette Dinnigan. Institute Director Kathryn North spoke of the need for Dame Elisabeth’s philanthropy legacy to continue.
The day was stolen however by special guests Amy, Martin and Louis Clarke. In her speech, Amy spoke about 19 month old Louis’ early diagnosis of a rare, terminal metabolic condition, and then the transformation of their lives when researchers at the Institute isolated the gene causing Louis’ condition and found it to be one that responds to treatment, meaning he is no longer terminal!
Because of this the rest of Louis’ family was able to be screened, and his sister can now be treated and hopefully will never suffer from any manifestations of the condition for which she too has the gene.
If you would like to donate to the charity or learn more about their wonderful work, visit their website here.